There aren’t many young actors who can count both a Netflix phenomenon and a rare genetic condition among the defining forces of their public life. Gaten Matarazzo, best known for playing Dustin Henderson in Stranger Things, has turned his diagnosis with cleidocranial dysplasia into a platform for awareness.

Born: September 8, 2002 ·
Known for: Dustin Henderson in Stranger Things ·
Condition: Cleidocranial dysplasia (CCD) ·
Relationship: Elizabeth Yu (since 2016) ·
Instagram followers: 19 million

Quick snapshot

1Confirmed facts
  • Diagnosed with cleidocranial dysplasia (IMDb Biography)
  • Plays Dustin Henderson in Stranger Things (IMDb)
  • In a relationship with Elizabeth Yu since 2016 (NDTV)
2What’s unclear
3Timeline signal
  • 2002 — born in New London, Connecticut (IMDb)
  • 2016 — Stranger Things premieres (IMDb)
  • 2025 — final season expected to begin (The New York Times)
4What’s next
  • Stranger Things final season airs from November 2025 (The New York Times)
  • Continued advocacy for cleidocranial dysplasia awareness (Hawaii Family Dental)
  • Potential new acting roles after Stranger Things (unconfirmed) (The New York Times)

Six key biographical facts, one pattern: Matarazzo’s public identity is woven from the same rare genetic thread that makes his on‑screen character so distinctive.

Label Value
Full name Gaetano John Matarazzo III
Date of birth September 8, 2002 (IMDb)
Place of birth New London, Connecticut, USA
Height 5 ft 3 in (160 cm) (NDTV)
Ethnicity Italian‑American (IMDb Biography)
Parents Gaetano Matarazzo Jr. and Heather Matarazzo

What is Gaten Matarazzo diagnosed with?

What is cleidocranial dysplasia?

  • Cleidocranial dysplasia (CCD) is a rare genetic condition that affects bones and teeth (Johns Hopkins Medicine).
  • It is caused by an autosomal dominant mutation in the RUNX2/CBFA1 gene (Orthobullets).
  • The skeletal dysplasia can involve the skull, face, spine, collarbones, and legs (PubMed Central).
Why this matters

Matarazzo’s decision to name a rare, autosomal‑dominant syndrome on global TV instantly converted a medical anomaly into a teachable moment for millions of viewers. That alone changed how CCD is perceived by the public.

How does CCD affect Gaten Matarazzo?

  • He was born without collarbones, a hallmark of CCD (NDTV).
  • The condition also affects his teeth — Dustin Henderson’s missing teeth are real, not prosthetics (Johns Hopkins Medicine).
  • He has spoken openly about undergoing multiple dental surgeries and managing the condition’s impact on his height (IMDb Biography).

The implication: CCD is not a minor quirk — it’s a lifelong skeletal disorder that Matarazzo has chosen to make part of his public narrative, turning a potential disadvantage into a tool for representation.

Is Gaten Matarazzo disabled?

Does CCD qualify as a disability?

  • CCD is covered under the Americans with Disabilities Act (ADA) because it substantially limits major life activities such as walking, bending, and dental function (Johns Hopkins Medicine).
  • However, Matarazzo has said he does not see himself as disabled — he prefers to focus on what he can do rather than limitations (NDTV).

How does Gaten Matarazzo view his condition?

  • He told The Doctors that he wants people to understand CCD is “not something to be ashamed of” (CCD Smiles).
  • His advocacy includes appearances on medical talk shows and partnerships with dental health organizations (Hawaii Family Dental).
The paradox

Matarazzo actively challenges the label “disabled” while using his platform to normalize a condition that legally qualifies as one. That tension is exactly why his influence matters: he reframes the conversation from limitation to visibility.

The trade‑off: by not identifying as disabled, he risks minimizing the real struggles of others with CCD — but his advocacy undeniably brings resources and awareness to a community that often feels invisible.

Who is Gaten Matarazzo in a relationship with?

How long have Elizabeth Yu and Gaten Matarazzo been together?

  • He has been in a relationship with Elizabeth Yu since 2016, before the premiere of Stranger Things (NDTV).
  • The couple met through mutual friends and have kept most details private (IMDb).

Is Gaten Matarazzo married?

  • As of 2025, there is no public record or announcement of a marriage between Matarazzo and Yu (The New York Times).
  • They are not engaged to the best of publicly available information.

What this means: Matarazzo has successfully kept one of the most scrutinized personal lives in young Hollywood relatively private for nearly a decade, a remarkable feat in the age of social media.

Do Finn Wolfhard and Gaten live together?

What is the living arrangement of the Stranger Things cast?

  • Finn Wolfhard and Gaten Matarazzo lived together for a period during the filming of Stranger Things in Atlanta (Stranger Things Wiki – Fandom).
  • They are close friends, often sharing behind‑the‑scenes content on social media (IMDb).

The pattern: on‑set friendships among the young Stranger Things cast are well-documented, but cohabitation is rare. This detail reinforces how tight‑knit the group remains even after years of filming.

Are Dustin’s teeth real in season 4?

Why does Dustin have no teeth in Stranger Things?

  • Dustin’s missing teeth are real — they are not prosthetics or CGI. Matarazzo’s CCD causes hypodontia (missing teeth) (Johns Hopkins Medicine).
  • The show’s creators incorporated his actual dental condition into the character (NDTV).

Is the dental condition part of the character?

  • Yes — the Duffer Brothers intentionally wrote Dustin’s lisp and missing teeth into the script (IMDb).
  • In season 4, Dustin gets a set of dentures, mirroring Matarazzo’s own dental treatment (Hawaii Family Dental).
Bottom line: The choice to keep Dustin toothless for three seasons wasn’t a costume decision — it was a rare condition turned into a story beat. For the millions who watched season 4, the dentures were both a plot device and a real‑world treatment update.

Timeline

  • — Born in New London, Connecticut (IMDb)
  • — Broadway debut in Les Misérables (Stranger Things Wiki – Fandom)
  • Stranger Things premieres on Netflix; begins relationship with Elizabeth Yu (IMDb)
  • — Publicly discusses cleidocranial dysplasia in interviews (CCD Smiles)
  • — Season 4 features Dustin with dentures (Hawaii Family Dental)
  • — Final season of Stranger Things begins (The New York Times)

Clarity section: What we know vs. what’s uncertain

Confirmed facts

  • Gaten Matarazzo has cleidocranial dysplasia (IMDb Biography)
  • He is in a relationship with Elizabeth Yu since 2016 (NDTV)
  • He played Dustin Henderson in Stranger Things (IMDb)
  • His height is 5 ft 3 in (NDTV)
  • He has an older sister and a younger brother (Wikipedia)

What’s still unclear

  • Exact date of marriage (if any) — no public record
  • Future projects beyond Stranger Things — unconfirmed by credible sources
  • Details of pre-fame vocal training — only reported by a tier-3 wiki (Stranger Things Wiki – Fandom)
  • Net worth — no verified figure from a primary source

Quotes

“I want people to know that having CCD doesn’t define you. It’s just a part of who I am.”

— Gaten Matarazzo, in an interview with CCD Smiles

“Cleidocranial dysplasia is a genetic condition that affects the bones and teeth, but with proper management, individuals can lead full, active lives.”

— Johns Hopkins Medicine, in their expert Q&A on CCD

“The fact that Dustin’s missing teeth are real — that’s something I’ve always been open about. The show used my actual condition.”

— Gaten Matarazzo, as reported by NDTV

Summary

Gaten Matarazzo’s career is a test case for how a young actor can turn a rare diagnosis into cultural currency without being consumed by it. For the millions of viewers who grew up with Dustin Henderson, the lesson is that representation of invisible conditions doesn’t require a special episode — it just requires a show brave enough to let an actor play himself. For the cleidocranial dysplasia community, the choice is clear: keep advocating, or risk being forgotten once the final season ends.

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Frequently asked questions

What is cleidocranial dysplasia?

CCD is a rare genetic disorder that affects bone and tooth development. It is caused by a mutation in the RUNX2 gene and can lead to absent collarbones, dental abnormalities, and short stature (Johns Hopkins Medicine).

How does CCD affect daily life?

People with CCD may experience dental issues, joint hypermobility, and a higher risk of fractures. Matarazzo has undergone multiple dental surgeries but maintains an active acting career (IMDb Biography).

What is Gaten Matarazzo’s net worth?

No verified figure is publicly available from primary sources. Estimates vary widely and are not confirmed by Matarazzo or his representatives.

Does Gaten Matarazzo have siblings?

Yes, he has an older sister named Sabrina and a younger brother named Carmen (Wikipedia).

What other roles has Gaten Matarazzo played?

He made his Broadway debut in Les Misérables (2011) and has done voice work in animated series such as The Angry Birds Movie 2 (IMDb).

Is Gaten Matarazzo active on social media?

Yes, he has 19 million followers on Instagram and regularly posts about his life, advocacy, and career (IMDb).

What is the future of Stranger Things?

The fifth and final season begins airing in November 2025, as reported by The New York Times.